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The Christian Council on Ageing Dementia Group was founded in 1990 with Dr Bob Baldwin (Consultant in Old Age Psychiatry, Manchester) as chair. He was followed by Professor John Wattis (now visiting Professor of Psychiatry for Older Adults at Huddersfield University) and the Group is currently chaired by Dr Daphne Wallace, retired Consultant in Old Age Psychiatry, Leeds. We are a network of people who came together initially because we shared a common concern that people with dementia were often not being regarded as persons with the same rights and spiritual needs as any other person. We have sought to promote a person-centred approach to the care of people with dementia. We are always pleased to welcome new members who share our concern. The core group meets twice a year, generally in York, to exchange ideas and information and to plan activities. We have organised two major conferences in York and Durham, together with a number of smaller regional events. Our members often speak at conferences organised by other groups. Our major achievement has been to set up and manage two dementia projects. The first three-year pilot project was based in Newcastle upon Tyne and completed in 1998. This project researched and produced resources for anyone involved in the care of people with dementia. The project aimed to promote a broad understanding of spirituality which could effectively include everyone. The second project, also based in Newcastle, and completed in November 2000, aimed to provide help and advice to anyone who has a responsibility for providing holistic care to people with dementia - of all faiths or none. Work undertaken included evaluating the resources produced in the earlier project, developing links with other faith communities, and collaborative working with other agencies and with the growing number of Dementia Services Development Centres. Whilst based in Newcastle, the Project had a nationwide remit. The Dementia Group continues to be in good heart with excellent attendances at its twice-yearly meetings in York and we have been pleased to welcome several new members this year. Once again our main focus has been on networking and facilitating contact between people with ideas and /or experience in the area of spiritual care in relation to people with dementia. We have as members of our Group people with a wealth of varied experience and knowledge which we continue to make available to anyone wanting to initiate work in their own area of the country or looking for a speaker on the theme of spiritual needs and dementia. Our main means of making connections between people and also informing them of initiatives in other parts of the country is our twice yearly Newsletter and we are always pleased to receive articles and information to include about initiatives, meetings or publications of relevance. It is an encouragement that we send the Newsletter free to a mailing list of 350 and received nearly £400 in donations to assist with this aspect of our work. We have discussed the various statements by the National Institute for Clinical Excellence (NICE) concerning the drugs Reminyl, Aricept, Exelon and Ebixa. Many people testify to the improvement in quality of life and capacity for communication people with dementia experience whilst taking these drugs and we share the indignation of the Alzheimer's Society which stated that 'NICE seems to have concluded that people with dementia are a group that it is not worth spending money on.' The battle goes on. We have welcomed the publication of Lighting the Way: spiritual and religious care for those with dementia by Patricia Higgins (an associate of the Group) and Richard Allen (available from Alison Johnson, 33 The Plain, Brailsford, Ashbourne DE6 3BZ). Another member of the Group Revd Susan Kirkbride has been responsible for two useful CDs Restoring the Soul - A selection of favourite hymns (price £6.00 plus £2.00 postage and packing) and O Tidings of Comfort and Joy - favourite Christmas hymns ( Price £5.00 plus £1.00 postage and packing), both available from 01786 467740. Future plans include updating our website which one of our members Clive Baldwin is facilitating, completing arrangements for organising and storing our archives, reprinting two of our popular publications (Spiritual Care: guidelines for care plans and Frequently Asked Questions on Spirituality and Religion) and collaborating on a new booklet on dementia care chaplaincy with MHA Care Group and a book on dementia care written from the perspective of carers and people with dementia to be edited by Steve Curran. Further information about the work of the Group is available on our website. If you would like to join our mailing list, purchase any of our publications or attend our meetings which are held on two Saturdays a year in York, please contact our Chair Dr Daphne Wallace, 15 Holme Park, High Bentham, LA2 7ND Tel: 01524 263136. Alison M Johnson If you share our vision of person-centred care for people with dementia and would like to become a member of the Group please contact the Chair (see Contact us). We offer three categories of membership: A Full members who expect to attend our twice-yearly meetings in York on a regular basis and are generally members of CCOA (to join see their website http://freespace.virgin.net/mike.lowis/CCOA) They receive papers and minutes and the Newsletter. B Associate members who are supportive of the work of the Group but not necessarily members of CCOA. This could include members of other faiths. They receive the Newsletter and minutes of each meeting to keep them in touch with the work but are not be expected to attend. C Corresponding members who simply receive the twice-yearly Newsletter. Newcastle Project Practice Guide Price £6.00 Is Anyone There Video Price £15.00 including two booklets Spiritual Care: guidelines for care plans by Laraine Moffitt and Gaynor Hammond Price £2.50 Frequently Asked Questions on Spirituality and Religion by Jo Airey, Gaynor Hammond, Pam Kent and Laraine Moffitt Price £1.00 Religious Practice and People with Dementia edited by Brian Allen Price £2.50 Dementia and Spirituality: an introductory reading list Price £2.00 Dementia and Spirituality: an annotated bibliography Price £3.00 Copies of any of these publications can be ordered from CCOA Publications, PO Box 403, Dorking, Surrey RH4 1SA enclosing a cheque payable to CCOA. Prices include postage and packing. We publish our Newsletter twice a year in April and October. It is mailed free to nearly 350 supporters although we appreciate donations towards the cost of postage. To receive a copy send your postal address to the Editor at 33 The Plain, Brailsford, Ashbourne, DE6 3BZ Newsletter No 26 November 2005 2007 27 February Past, present and future: life journeys for older people Psalm at Southwark Cathedral. For details phone 020 7388 5658 7 March Painting Age: exploring theology, ageing and pastoral practice. A seminar led by Revd Dr James Woodward For details phone 01564 778022 12 March Spirituality and Old Age. At Guildford. Keynote speaker Revd Dr James Woodward. For details e-mail 1 May Giving and receiving: the to and fro of third age ministry Psalm at Southwark Cathedral. For details phone 020 7388 5658 13 June Is there a future for residential care? For details as they become available phone 01564 778022 3 July Sixth Leveson Lecture For details as they become available phone 01564 778022 24 October Coping with dementia For details as they become available phone 01564 778022 The CCOA Dementia Group has close relationships with a number of other organisations which produce resources for those concerned about the spiritual needs of people with dementia. Bradford Dementia Group Dementia Services Development Centres (DSDCs) Faith in Elderly People, Leeds Focolare Centre for Unity 4M Publications John Young Foundation The Leveson Centre for the Study of Ageing, Spirituality and Social Policy
Order Leveson Centre Publications online Revd Dr Keith Albans is Director of Chaplaincy and Spirituality, the Revd Margaret Goodall Dementia Care Chaplaincy Adviser and Elaine Robinson part-time Spirituality of Ageing Resources Officer. In collaboration with the CCOA Dementia Group, MHA Care Group has produced two useful leaflets - Visiting people with dementia and Worship for people with dementia. The Halley Stewart Project co-ordinated by Revd Albert Jewell who was then at the MHA Care Group produced a series of booklets written to help individuals, local churches and other interested groups share a deeper understanding of the spiritual needs of older people. They include one entitled 'The Spiritual Needs of People with Dementia' For publications contact MHA Care Group, Epworth House, Stuart Street, Derby, DE1 2EQ, Tel 01332 296200. See www.mha.org.uk Pastoral Care Project, Nuneaton Psalm (Project for Seniors and Lifelong Ministry) This is a small independent charity developing opportunities for continuing work and ministry by and for older people in London. It includes training programmes and seminars and a developing network of parish workers/volunteers. There is also a modest resource centre at St Pancras Church. Contact Ann Morisy, St Pancras Vicarage, 6 Sandwich Street, London WC1H 9PL, Tel 020 7388 1461. See www.psalm.org.uk Chair Dr Daphne Wallace, 15 Holme Park, High Bentham, LA2 7ND Tel: 01524 263136 Email |
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